Volume 12 Issue 2
Dec.  2021
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Article Contents
Christina J. Pickering, Maya Dancey, Karen Paik, Tracey O'Sullivan. Informal Caregiving and Disaster Risk Reduction: A Scoping Review[J]. International Journal of Disaster Risk Science, 2021, 12(2): 169-187. doi: 10.1007/s13753-021-00328-8
Citation: Christina J. Pickering, Maya Dancey, Karen Paik, Tracey O'Sullivan. Informal Caregiving and Disaster Risk Reduction: A Scoping Review[J]. International Journal of Disaster Risk Science, 2021, 12(2): 169-187. doi: 10.1007/s13753-021-00328-8

Informal Caregiving and Disaster Risk Reduction: A Scoping Review

doi: 10.1007/s13753-021-00328-8
Funds:

We would like to thank the following librarians at the University of Ottawa for their guidance throughout the project: Mish Boutet, Lindsey Sikora, Sarah Visintini, and Marie-Cécile Domecq. Thank you for your unending patience and library sciences wisdom. Thank you to Lyric Oblin-Moses for your help refining the search terms and inclusion/exclusion criteria by screening 5% of the articles pulled from the initial Medline search. This research was partially funded by the Ontario Ministry of Research and Innovation through the Early Researcher Award, awarded to Dr. Tracey O’Sullivan.

  • Available Online: 2021-12-25
  • Informal caregivers are a population currently in the shadows of disaster risk reduction (DRR), and yet essential to the provision of healthcare services. This scoping review explored the literature to understand issues related to informal caregiving and promising practices to support resilience for disasters. Following guidelines for scoping review as outlined by Tricco et al. (2016), relevant publications were identified from five major databases— Medline, Embase, PubMed, Web of Science, and Scopus. Relevant studies referenced informal caregiving and disasters for a variety of population groups including children, people with disabilities or chronic illnesses, and older adults. Studies were excluded if they discussed formal caregiving services (for example, nursing), lacked relevance to disasters, or had insufficient discussion of informal caregiving. Overall, 21 articles met the inclusion criteria and were fully analyzed. Five themes were identified: (1) the need for education and training in DRR; (2) stressors around medication and supply issues; (3) factors affecting the decision-making process in a disaster; (4) barriers leading to disaster-related problems; and (5) factors promoting resilience. Recommended areas of strategic action and knowledge gaps are discussed. Many informal caregivers do not feel adequately prepared for disasters. Given the important role of informal caregivers in healthcare provision, preparedness strategies are essential to support community resilience for those requiring personal care support. By understanding and mobilizing assets to support the resilience of informal caregivers, we also support the resilience of the greater healthcare system and the community, in disaster contexts.
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  • Adams, V., S.R. Kaufman, T. van Hattum, and S. Moody. 2011. Aging disaster: Mortality, vulnerability, and long-term recovery among Katrina survivors. Medical Anthropology 30(3): 247–270.
    Ahmadi, S., H. Khankeh, R. Sahaf, A. Dalvandi, S.A. Hosseini, and F. Alipour. 2018a. How did older adults respond to challenges after an earthquake? Results from a qualitative study in Iran. Archives of Gerontology and Geriatrics 77: 189–195.
    Ahmadi, S., H. Khankeh, R. Sahaf, A. Dalvandi, and S.A. Hosseini. 2018b. Daily life challenges in an earthquake disaster situation in older adults: A qualitative study in Iran. Journal of Clinical and Diagnostic Research 12(4): IC8–12.
    Allweiss, P., and A. Albright. 2011. Diabetes, disasters and decisions. Diabetes Management 1(4): 369–377.
    Arksey, H., and L. O’Malley. 2005. Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology 8(1): 19–32.
    Armstrong, R., B.J. Hall, J. Doyle, and E. Waters. 2011. Cochrane update. “Scoping the scope” of a Cochrane review. Journal of Public Health (Oxford, England) 33(1): 147–150.
    Baker, M.D., L.R. Baker, and L.A. Flagg. 2012. Preparing families of children with special health care needs for disasters: An education intervention. Social Work in Health Care 51(5): 417–429.
    Chandra, A., M. Williams, A. Plough, A. Stayton, K.B. Wells, M. Horta, and J. Tang. 2013. Getting actionable about community resilience: The Los Angeles County community disaster resilience project. The American Journal of Public Health 103(7): 1181–1189.
    Christensen, J.J., and H. Castaneda. 2014. Danger and dementia: Caregiver experiences and shifting social roles during a highly active hurricane season. Journal of Gerontological Social Work 57(8): 825–844.
    Christensen, J.J., E.D. Richey, and H. Castaneda. 2013. Seeking safety: Predictors of hurricane evacuation of community-dwelling families affected by Alzheimer’s disease or a related disorder in South Florida. Journal of Alzheimer 28(7): 682–692.
    Dixon-Woods, M., S. Bonas, A. Booth, D.R. Jones, T. Miller, A.J. Sutton, R.L. Shaw, J.A. Smith, and B. Young. 2006. How can systematic reviews incorporate qualitative research? A critical perspective. Qualitative Research 6(1): 27–44.
    Durrani, S., J. Contreras, S. Mallaiah, L. Cohen, and K. Milbury. 2019. The effects of Yoga in helping cancer patients and caregivers manage the stress of a natural disaster: A brief report on Hurricane Harvey. Integrative Cancer Therapies 18. https://doi.org/10.1177/1534735419866923.
    Fast, J. 2015. Caregiving for older adults with disabilities: Present costs, future challenges. Quebec Canada: Institute for Research on Public Policy Study.
    Gibson, A., J. Walsh, and L.M. Brown 2018. A perfect storm: Challenges encountered by family caregivers of persons with Alzheimer’s disease during natural disasters. Journal of Gerontological Social Work 61(7): 775–789.
    Government of Canada. 2016. Get an emergency kit! 2016. https://www.getprepared.gc.ca/cnt/kts/bsc-kt-en.aspx. Accessed 23 Oct 2019.
    Grant, K.R., C. Amaratunga, P. Armstrong, M. Boscoe, A. Pederson, and K. Willson (eds.). 2004. Caring for/caring about: Women, home care and unpaid caregiving. Health Care in Canada Series. Canada: Garamond Press Ltd.
    Green, S.E. 2006. “Enough already”! Caregiving and disaster preparedness – Two faces of anticipatory loss. Journal of Loss & Trauma 11(2): 201–214.
    Hawe, P., and L. Potvin. 2009. What is population health intervention research? Canadian Journal of Public Health 100(1): I8–14.
    Heppenstall, C.P., T.J. Wilkinson, H.C. Hanger, M.R. Dhanak, and S. Keeling. 2013. Impacts of the emergency mass evacuation of the elderly from residential care facilities after the 2011 Christchurch Earthquake. Disaster Medicine and Public Health Preparedness 7(4): 419–423.
    Hollander, M., and N. Chappell. 2002. Final report of the national evaluation of the cost-effectiveness of home care. A report prepared for the Health Transition Fund, Health Canada. Victoria, Canada: Centre on Aging, University of Victoria.
    Kyota, K., K. Tsukasaki, and T. Itatani. 2018. Disaster preparedness among families of older adults taking oral medications. Home Health Care Services Quarterly 37(4): 325–335.
    Levac, D., H. Colquhoun, and K.K. O’Brien. 2010. Scoping studies: Advancing the methodology. Implementation Science 5: 69–77.
    Mace, S.E., and C.J. Doyle. 2017. Patients with access and functional needs in a disaster. Southern Medical Journal 110(8): 509–515.
    Morgan, A., and E. Ziglio. 2007. Revitalising the evidence base for public health: An assets model. Promotion & Education 14(2): 17–22.
    Oliva, N.L., B. Wexler, G. Gullickson, M. Manco, A. Layton, S. McLean, and S.R. Brunskill. 2013. Disaster preparedness for veterans with dementia and their caregivers: Evolution of an educational intervention. Federal Practitioner 30(7): 29–34.
    O’Sullivan, T.L. 2009. Support for families coping with stroke or dementia: Special considerations for emergency management. Radiation Protection Dosimetry 134(3–4): 197–201.
    O’Sullivan, T.L., W. Corneil, C.E. Kuziemsky, and D. Toal‐Sullivan. 2015. Use of the structured interview matrix to enhance community resilience through collaboration and inclusive engagement. Systems Research and Behavioral Science 32(6): 616–628.
    O’Sullivan, T.L., C. Fahim, and E. Gagnon. 2018. Asset literacy following stroke: Implications for disaster resilience. Disaster Medicine and Public Health Preparedness 12(3): 312–320.
    O’Sullivan, T., A. Ghazzawi, A. Stanek, and L. Lemyre. 2012. “We don’t have a back-up plan”: An exploration of family contingency planning for emergencies following stroke. Social Work in Health Care 51(6): 531–551.
    Ozaki, A., M. Tsubokura, C. Leppold, T. Sawano, M. Tsukada, T. Nemoto, K. Kosugi, Y. Nishikawa, et al. 2017. The importance of family caregiving to achieving palliative care at home: A case report of end-of-life breast cancer in an area struck by the 2011 Fukushima nuclear crisis. Medicine 96(46): Article e8721.
    Patton-Levine, J.K., J.R. Vest, and A.M. Valadez. 2007. Caregivers and families in medical special needs shelters: An experience during Hurricane Rita. Journal of Disaster Medicine 2(2): 81–86.
    Peek, L.A., and A. Fothergill. 2008. Displacement, gender, and the challenges of parenting after Hurricane Katrina. National Women’s Studies Association Journal 20(3): 69–105.
    Peters, D.J., C.M. Godfrey, H. Khalil, P. Mcinerney, D. Parker, and C.B. Soares. 2015. Guidance for conducting systematic scoping reviews. International Journal of Evidence-Based Healthcare 13(3): 141–146.
    Public Health Agency of Canada. 2012. What is the population health approach? http://www.phac-aspc.gc.ca/ph-sp/approach-approche/index-eng.php. Accessed 24 Oct 2019.
    Romanow, R.J. 2002. Building on values: The future of health care in Canada. Final report. Ottawa, Canada: The Royal Commission on the Future of Health Care in Canada. http://www.hc-sc.gc.ca/english/care/romanow/hcc0023.html. Accessed 25 Oct 2019.
    Sakashita, K., W.J. Matthews, and L.G. Yamamoto. 2013. Disaster preparedness for technology and electricity-dependent children and youth with special health care needs. Clinical Pediatrics 52(6): 549–556.
    Schulz, R., and J. Eden (eds.). 2016. Families caring for an aging America. Washington, DC: Academies Press.
    Sinha, S.K., B. Griffin, T. Ringer, C. Reppas-Rindlisbacher, E. Stewart, I. Wong, S. Callan, and G. Anderson. 2016. An evidence-informed national seniors strategy for Canada, 2nd edn. Toronto, ON: Alliance for a National Seniors Strategy.
    Skinner, M.W., N.M. Yantzi, and M.W. Rosenberg. 2009. Neither rain nor hail nor sleet nor snow: Provider perspectives on the challenges of weather for home and community care. Social Science & Medicine 68(4): 682–688.
    Stall, N. 2019. We should care more about caregivers. Canadian Medical Association Journal 191(9): E245–E246.
    Tricco, A.C., E. Lillie, W. Zarin, K. O’Brien, H. Colquhoun, M. Kastner, D. Levac, C. Ng, et al. 2016. A scoping review on the conduct and reporting of scoping reviews. BMC Medical Research Methodology 16(1): 1–10.
    Turcotte, M. 2013. Family caregiving: What are the consequences? Insights on Canadian society. Statistics Canada. http://www.statcan.gc.ca/pub/75-006-x/2013001/article/11858-eng.pdf. Accessed 26 Oct 2019.
    UNDRR (United Nations Office for Disaster Risk Reduction). 2015. Sendai framework for disaster risk reduction 2015–2030. http://www.unisdr.org/files/43291_sendaiframeworkfordrren.pdf. Accessed 27 Oct 2019.
    UNICEF (United Nations International Children’s Emergency Fund). 2007. The participation of children and young people in emergencies: A guide for relief agencies, based largely on experiences in the Asian tsunami response. https://www.unicef.org/eapro/the_participation_of_children_and_young_people_in_emergencies.pdf. Accessed 28 Oct 2019.
    Wakui, T., E.M. Agree, T. Saito, and I. Kai. 2017. Disaster preparedness among older Japanese adults with long-term care needs and their family caregivers. Disaster Medicine and Public Health Preparedness 11(1): 31–38.
    White, B. 2006. Disaster relief for deaf persons: Lessons from Hurricanes Katrina and Rita. Review of Disability Studies 2(3): 49–56.
    Wyte-Lake, T., M. Claver, S. Tubbesing, D. Davis, and A. Dobalian. 2019. Development of a home health patient assessment tool for disaster planning. Gerontology 65(4): 353–361.
    Young, T.K. 2005. Population health: Concepts and methods. New York: Oxford University Press.
    Zuurmond, M., V. Nyapera, V. Mwenda, J. Kisia, H. Rono, and J. Palmer. 2016. Childhood disability in Turkana, Kenya: Understanding how carers cope in a complex humanitarian setting. African Journal of Disability 5(1): Article 277.
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